7th Annual 24-Hour World Sickle Cell Day Marathon to Close Survival Gap

In recognition of World Sickle Cell Day, Cayenne Wellness Center and the Global Alliance of Sickle Cell Disease Organizations (GASCDO) will host the 7th Annual 24-Hour World Sickle Cell Day Marathon on June 19, 2026. This free virtual event, streamed live for 24 hours, unites patients, caregivers, advocates, healthcare professionals, researchers, policymakers, and community leaders worldwide. The 2026 theme, "Closing the Survival Gap: Equity in Sickle Cell Care," addresses persistent disparities in diagnosis, treatment, mental health services, research, and quality care for individuals living with sickle cell disease. The marathon features sessions such as Warrior Speaks, where individuals share personal journeys; SCD Shaping Siblings, exploring family dynamics; The Role of a Caregiver and the Fight Against SCD; Mental Health and Sickle Cell Disease; and a key session titled Closing the Survival Gap in Sickle Cell Disease: From Crisis Care to Chronic, Continuous Care, featuring international leaders. Community engagement activities, support groups, author conversations, and patient storytelling are also included. Dr. Carolyn Rowley, Founder and Executive Director of Cayenne Wellness Center, emphasized that the event ensures those affected know they are not alone, bringing together global voices to elevate awareness and push for equitable care. The event is supported by Advocate Sponsor Agios Pharmaceuticals and Community Sponsor Fulcrum Therapeutics. Registration is free via the provided link, and more details are available at the event website. Cayenne Wellness Center, a 501(c)(3) nonprofit, focuses on education, advocacy, and access to resources. GASCDO is an international network strengthening collaboration for equitable care and support.

The marathon welcomes individuals living with sickle cell disease, caregivers, healthcare professionals, researchers, students, nonprofits, policymakers, and allies. Sessions will address healthcare equity, mental health, caregiver experiences, legislative advocacy, blood donation and stem cell registries, data collection, media representation, and innovations in care. This year's theme highlights the urgent need to close survival gaps and ensure every person receives continuous, equitable care. Sponsors like Agios Pharmaceuticals and Fulcrum Therapeutics amplify education and community engagement. Attendees can register at the provided Zoom link and explore more on the event website. Cayenne Wellness Center and GASCDO invite all to join this global movement to raise awareness and drive action for sickle cell disease equity.