Curated News
By: NewsRamp Editorial Staff
February 26, 2026
Quoin's NETHERTON NOW Campaign Hits 2M Views, Boosting Rare Disease Awareness
TLDR
- Quoin Pharmaceuticals' NETHERTON NOW campaign demonstrates effective patient engagement with 2 million video views, potentially strengthening their position in rare disease treatment development.
- Quoin Pharmaceuticals launched the NETHERTON NOW awareness campaign in 2025, using patient stories and educational content to generate 24 million impressions about Netherton Syndrome.
- The NETHERTON NOW campaign amplifies patient voices for a neglected disease, fostering community connection and advancing awareness to improve future treatment options.
- Netherton Syndrome is a rare genetic skin disorder affecting the SPINK5 gene, with Quoin's campaign reaching millions to highlight this little-known condition.
Impact - Why it Matters
This news matters because it highlights a critical intersection of patient advocacy and pharmaceutical innovation for rare diseases like Netherton Syndrome, which affects hundreds of millions globally when considered collectively. For patients and families, the campaign provides a vital platform to break the silence around a devastating condition with no cure, fostering community connection and pushing for greater medical recognition. The impressive engagement metrics—2 million views and 24 million impressions—demonstrate public interest and the power of storytelling to drive awareness, which can accelerate research funding and regulatory attention. Quoin's parallel development of QRX003 in late-stage trials shows how awareness campaigns can complement scientific efforts, potentially leading to the first approved treatment for a disease that is life-threatening in infancy and burdensome throughout life. This model of combining visibility with clinical advancement sets a precedent for addressing other neglected rare diseases, emphasizing that patient voices are essential in shaping healthcare priorities and outcomes.
Summary
Quoin Pharmaceuticals Ltd. (NASDAQ: QNRX) has achieved remarkable success with its NETHERTON NOW awareness campaign, generating nearly 2 million video views and over 24 million impressions globally since its launch during Rare Disease Month 2025. The campaign, created to amplify the voices of patients, caregivers, and clinicians affected by Netherton Syndrome—a rare genetic skin disorder with no approved treatment or cure—has provided a powerful platform for sharing stories and increasing visibility for this devastating condition. Netherton Syndrome, caused by mutations in the SPINK5 gene, leads to excessive skin shedding, chronic inflammation, recurrent infections, dehydration, and life-threatening complications, particularly in infancy where 10–20% of newborns do not survive.
The campaign's impact was highlighted by Quoin Pharmaceuticals' leadership, with Co-Founder and COO Denise Carter noting that the response "far surpassed anything we anticipated," emphasizing the courage of patients and families who shared their experiences. In conjunction with Rare Disease Day 2026, the campaign released a new video titled "If There Was a Cure," featuring reflections from patients and families on what meaningful treatment progress would mean in their lives. Dr. Michael Myers, Co-Founder and CEO, stressed that growing awareness "must be accompanied by action," including advancing clinical research and ensuring access to potential treatments through PRISM MediaWire's trusted press release distribution service.
Quoin's commitment extends beyond awareness to developing therapeutic solutions, with its lead investigational candidate QRX003 currently in late-stage pivotal clinical trials for Netherton Syndrome. The company's broader pipeline targets multiple rare and orphan diseases, reflecting its mission to address significant unmet medical needs. For more information about the disease and campaign, visit https://nethertonnow.com, and to learn about Rare Disease Day, visit www.rarediseaseday.org. This initiative underscores the importance of combining advocacy with scientific progress to support the rare disease community.
Source Statement
This curated news summary relied on content disributed by PRISM Mediawire. Read the original source here, Quoin's NETHERTON NOW Campaign Hits 2M Views, Boosting Rare Disease Awareness
