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Quoin's NETHERTON NOW Campaign Hits 2M Views, Boosting Rare Disease Awareness

Quoin Pharmaceuticals' NETHERTON NOW campaign reaches 2M video views, raising awareness for Netherton Syndrome—a rare genetic disease with no cure—ahead of Rare Disease Day 2026.

This news matters because it highlights a critical intersection of patient advocacy and pharmaceutical innovation for rare diseases like Netherton Syndrome, which affects hundreds of millions globally when considered collectively. For patients and families, the campaign provides a vital platform to break the silence around a devastating condition with no cure, fostering community connection and pushing for greater medical recognition. The impressive engagement metrics—2 million views and 24 million impressions—demonstrate public interest and the power of storytelling to drive awareness, which can accelerate research funding and regulatory attention. Quoin's parallel development of QRX003 in late-stage trials shows how awareness campaigns can complement scientific efforts, potentially leading to the first approved treatment for a disease that is life-threatening in infancy and burdensome throughout life. This model of combining visibility with clinical advancement sets a precedent for addressing other neglected rare diseases, emphasizing that patient voices are essential in shaping healthcare priorities and outcomes.