Curated News
By: NewsRamp Editorial Staff
June 17, 2024
Cystic Fibrosis Foundation Board Chair KC White Shares Personal Journey and Progress in Care
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- Advancements in treatments like modulators have transformed the health of 90% of the CF population, providing a competitive advantage for those with CF.
- The Cystic Fibrosis Foundation funds research, drug development, and high-quality care, partnering with and advocating for the CF community.
- The Foundation is committed to finding a cure, providing long, fulfilling lives for all people with CF, and supporting the CF community in all aspects of their lives.
- KC White, the first person with CF to serve as board chair, inspires as an advocate and volunteer, promoting progress for the CF population.
Impact - Why it Matters
Cystic fibrosis is a rare, progressive, and genetic disease that affects about 40,000 people in the United States. KC White's advocacy and the Foundation's work are crucial in advancing care and treatment options, leading to transformative treatments for the entire CF population. This impacts those with CF and their families, offering hope for longer, fulfilling lives.
Summary
KC White, Board Chair of the Cystic Fibrosis Foundation, participated in a nationwide satellite media tour to discuss the disease, her personal journey, and how the Foundation is helping progress care and treatment options. White, diagnosed with cystic fibrosis at age 3, is the first person with CF to serve as board chair.
The Cystic Fibrosis Foundation is committed to finding a cure and providing all people with CF the opportunity to lead long, fulfilling lives. The Foundation funds more CF research than any other organization and supports a national network of over 130 CF care centers.
Source Statement
This curated news summary relied on this press release disributed by News Direct. Read the source press release here, Cystic Fibrosis Foundation Board Chair KC White Shares Personal Journey and Progress in Care
